I am so impressed and encourage others to get a copy right away. This should be the major go-to resource book for dystonia for many years to come. Kudos to you Tom – well done!!
I've had dystonia for 8 years and this is the best book on the market about this disorder. It covers so many things I am dealing with, both physically and emotionally/psychologically. This book is great for anyone with dystonia no matter how long they have had it.
This book is excellent for dystonia sufferers. It's extremely well organized so you can search specifics. I found it the best source I've found in 25 years.
This book is a wonderful read and a great resource for family & friends to gain more insight. My husband has picked it up and read sections that gave him a-ha moments. He's been with me for my diagnosis to now journey. I would always try to explain how it felt. How doing something so benign, like picking something up the wrong way, could flare me up. Now he better understands dystonia and my life with dystonia.
I bought the Kindle version a couple of days ago. Just looking through the table of contents, I am in awe of the vast amount of knowledge, experience, resources, and inspiration that is in this book.
Thanks for a wonderful, enlightening book! I learned more from a quick read thru of the information list at the back of the book than I expected to garner from the whole publication! Life changing!
I received my book, Tom, and it is awesome! This will be such a wonderful resource -well written, well-organized, well-researched, and very informative. Thank you for your efforts to put in print everything you have learned through your dystonia journey. Such a gift!
I believe that everyone with Dystonia, family members, and doctors should get a copy! It is so well written & with such feeling coming from a fellow dystonian. I am just at the beginning, but it is full of every bit of information that someone like me would have died to have 40 years ago and it is also SO positive! We are so blessed that you took the time to write this amazing book for all of us. Thank you Tom!
Excellent read Tom! I really enjoy your style of writing and your voice. It is refreshing to read an educational book from the patient's perspective. Every neurologist and movement specialist should have a copy and sell it in their practice.
Fantastic book...super informative. To understand someone else's journey is to take a short walk in their shoes. Thank you for sharing your painful journey...this book is a help to many! Highly recommend!
I just finished your book. It was chock full of good stuff for everyone. For those with dystonia there were so many helpful suggestions and for the rest of us, many worthwhile philosophies. I found many similarities between your thinking and my own. I hope the book is selling like crazy and congratulations on setting its writing as a goal and achieving it.
I just received your book. It's a real treasure because you understand! Thank you so much. I will not give up on this very challenging journey.
This book has helped me to release the past and changed my views and outlook in so many ways, and I've still not quite finished the book yet! Thank you for sharing your experiences with us all.
Loving your book! It's brilliant! You’re an excellent writer and your book is an enjoyable read, as well as helpful! God bless for the help you provide people through your work!
I saw a post about this book on my facebook wall, followed the link, and had to get it. I'm not even that far in and I can say this is the kind of book I've been waiting for. I wish I had this when I was first diagnosed, though it's still very helpful now. Can't wait to finish it. The further I get into it, the more I think it would be a good idea to get a second copy to pass around to interested friends and family. Thank you so much Tom!
This is the book you went looking for when you were diagnosed. The "Am I the only one who feels this or that way" is answered. It's that, "Hey you, this is what it is but nothing can change your attitude unless you let it." Positivity breeds positivity and I like being surrounded by what uplifts me. This book does just that.
I am only on chapter 5 of your book but have been so moved by your words.
I received the book yesterday and had a little bit of time to browse through it. I read the chapter on anxiety since I had just been out of town and had a panic attack because of having to get on the highway, which I have trouble with because of anxiety. Your chapter on explaining how you dealt with your panic attacks was helpful and it made me not want to give in to letting this continue to control me from taking long distance trips.